Past posts have related to Macular Degeneration, peripheral neuropathy, and Myxomatous Degeneration of the Mitral Valve followed by episodes of Atrial Fibrillation.
My Macular degeneration, wet type, is stable. I switched treatment to Eylea in 9/12 because shots were necessary just every 2 months instead of every month with Leucentis.
My peripheral neuropathy was finally diagnosed as CIDP, Chronic Inflammatory Demyelinating Polyneuropathy, when I saw Dr. Jeffery Ralph in San Francisco in 8/12. This is important since Medicare covers treatment of this condition with IVIG for life. This is considered the first-line treatment for this condition. I took this med 4 years ago but stopped because Medicare said it would no longer cover my neuropathy. I didn't have the diagnosis of CIDP at that time. Dr. Ralph was the first peripheral neuropathy specialist I ever saw, previously having seen just general neurologists. so, if you have peripheral neuropathy, it's very important to see a specialist in this area if there is a question as to your proper diagnosis. I have taken Retuxin for the past 3 years, and in retrospect, I don't believe it helped me. I hope to start IVIG infusions in April. My balance, in particular has deteriorated in recent years and, hopefully the IVIG will halt this progress.
For 2+ years I took Amioderone to prevent a. fib. but last year I noticed slowly progressing mental confusion so I stopped the med. Over the next few months I noticed the confusion clearing and my mental status is back to normal. My cardiologist then started me on Multaq. Since then, I have had intermittent a. fib. and I have not felt as well as previously, less energy and more tired. I had an attempt at an ablation 3 years ago which failed. I understand the technique has changed so hope to persuade my cardiologist to try another ablation when I see him later this week in an attempt to prevent the a. fib. from recurring at all.